Benign Congenital Hypotonia (BCH) My Story | Storytime
147This is my story about battling Benign Congenital Hypotonia. Soon I will have a video about where exactly it comes from and if it is caused by an underlying condition.
Please take when I say it was "like I was paralyzed" very lightly, as I was not, I just could not move as much as a regular baby could. Moving and being picked up was very painful for me if done incorrectly. It was just a way for you to understand what it would have been like.
When editing this video I decided to look through a baby book my mom made and noticed some discrepancies with what she told me. You can get the correct information below. Do not hate just for this, I had to ask her from her memory and this was a major thing when I was a baby which was 23 years ago, but 20 years ago is when I stopped having major issues with my Hypotonia, and it was more just creating sprains and strains and having me fall.
I first slept through the night at 6 weeks old. (My mom made a note, that I slept through most of the night every night as I was not an eater.)
I first smiled when I was 3 weeks old.
I first discovered my hands when I was 3 weeks old.
I first grasped something at 6 weeks old.
I first discovered my feet when I was 10 weeks old.
I first clapped when I was 8 1/2 months old.
I first waved bye-bye when I was 7 months old.
I first drank from a cup when I was 7 1/2 months old.
I first used a spoon when I was 1 years old.
I first held up my head when I was 4 months old and held it to the side.
I first rolled over when I was 8 months old. (I could roll half way at 4 months old.)
I first sat up when I was 6 months old.
I first scooted when I was 10 months old.
I could pull to a standing up when I was 14 months old. (1 year and 2 months.)
I could stand alone when I was 17 3/4 months old. (Almost a year and a half.)
I took my first step when I was 15 months old. (1 year and 3 months.)
I started walking at 17 3/4 months old. (Almost 1 year and a half.)
I do not have an exact date of when I started talking, but by 21 1/2 months (1 year and 9 1/2 months,) I could say "hi," "bye," "ow," "wow." "look," "stinky," "dirty," "more," "mommy," "daddy," "oh," "ah," "wee-wee," "baby," "doggy," "kitty."
Those are my milestones, some may be average, but from children that I have met, I have been really far behind on a lot of things, though I do not know what exactly is "average." I just know a lot of babies who were walking before being 1 years old.
For more information on Benign Congenital Hypotonia and muscle tone, you can view the links below:
https://www.mda.org.au/disorders/congenitalmd/congenitalhypotonia/#:~:text=Benign%20congenital%20hypotonia%20(BCH)%20is,sign%20of%20an%20underlying%20problem.
https://patient.info/doctor/benign-congenital-hypotonia
https://en.wikipedia.org/wiki/Muscle_tone
I hope you enjoyed this video, please let me know in the comments below, and if you can relate or you really did like the video, then please show me that by hitting the like button. I post videos every Sunday. I will try to do a follow up video on this once I get my results back, so I will keep you updated in the comments below, if there will be a delay.