Help KYRA Beat a Brain Tumor - #TeamKYRA Please Watch | Chaos
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Kyra suffers from a NF-1 Brain Tumor:
Neurofibromatosis type 1 (NF1)
What is neurofibromatosis type 1?
Neurofibromatosis type 1 (NF1) is a genetic disorder that can affect multiple systems of the body. It is characterized by the presence of:
Skin changes, such as café-au-lait spots (light brown patches on the skin), and freckles on the armpits or groin area
Iris Lisch nodules (benign growths on the colored part of the eye)
Skeletal abnormalities, including scoliosis and bowing of the legs
Large head size
Learning disabilities
Affected individuals are also at increased risk to develop certain benign tumors of the nervous system, especially:
Neurofibromas (benign or malignant tumors of the nerves that form on or under the skin)
Central nervous system tumors, (tumors that form on the optic nerve, which connects the eye to the brain) and other low grade gliomas
Other tumors that occur more frequently in patients with NF1 include:
Malignant peripheral nerve sheath tumors (a malignant tumor of the nerves)
Pheochromocytomas (tumors of the adrenal glands, the small hormone producing organs located on top of each kidney)
Leukemia (especially juvenile myelomonocytic leukemia (a blood cancer that affects young children)
Breast cancer
Gastrointestinal stromal tumor (tumor that forms along the gastrointestinal tract)
Rhabdomyosarcoma (a tumor of the muscle)
Other complications seen in patients with NF1 include:
Learning and/or attention problems which occur in about half of individuals with NF1 and persist into adulthood
Scoliosis
High blood pressure
Seizures
Stroke and changes in the blood vessels in brain
Children with NF1 may also have personality and/or behavioral differences compared to children who do not have NF1.
The incidence of NF1 is approximately one in 3,000 live births and it affects males and females of all races equally.
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Help KYRA Beat a Brain Tumor - #TeamKYRA Please Watch | Chaos
https://www.youtube.com/watch?v=LoEmTSPTP_s
Chaos
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