Little Boy Needs Help #WINITFORJEO
67GoFundMe - https://www.gofundme.com/win-it-for-jeo
Jeovany is 13 years old, born with Trisomy 21 (Down Syndrome)
About 3 months ago we started noticing he was sleeping a lot! And he never sleeps during day! He's always playing or doing something, so we saw he stopped moving his arm, just holding it close to his side, he also started loosing strength. Jeo couldn't even hold a cup to drink water so we went to his doctor all they would say is he's ok, he needs rest, and give him some pediasure, then we noticed he was having trouble walking, he would drag his right leg a little so again we took him to Baylor Medical Center, they said nothing was wrong, sent us home.... since they didn't see anything all they could say was "it's a tummy virus he'll be ok" so as days pass we notice that this is not him, something is wrong, he's not like this, what's going on... well no one could tell us anything now here's the thing, Jeovany has pain tolerance, so he hardly ever complains of anything hurting him. We would ask and he just wouldn't say something hurt so we didn't bother him with it much...i know, I know why didn't we do something or him say something... maybe thats were we went wrong!! But we just took the doctors word for it. "He'll be ok" well he wasn't, so one day at the store he passed out in the middle of the store right on the floor and couldn't wake up! Literally, sleeping and snoring loud... we tried waking and he would just look at us and back to sleep... so WTH....this is not right! We rushed to the children's hospital, test after test and more test! MRI's and so many other things. They had mentioned he had gotten "silent seizures" more test were done, and saw his brain was swollen due to an infection in his brain, that could have been caused from a viral infection. His brain swelled up in the part where the brain controls the body, which explained why he was loosing movement and strength. Then they told us his antibodies were working against him instead of helping him and was diagnosed with encephalitis, but that's not all.... on his second MRI they saw liquid around his brain and wanted to see if they could run it for testing so he went under a procedure and we still don't know what happened with that yet! So about two weeks ago they said everything was looking good and he could go. But he wasn't coming home, he was gonna be sent to a rehab facility, so as he is there we notice more strange things, "This is not my baby something is hurting him". Well he was there for a week and they said "He can go home" We brought him home for the weekend, we were so happy, a close friend bought him a pony! Jeo was so exited but could hardly move. We knew something was still wrong, that same weekend, he started yelling and twitching as if he was in pain. Something I couldn't explain unless you saw it, again we came back to Children's Hospital he went under more testing and they realized his breathing was very slow, and not enough oxygen is going to his heart and brain. His little heart is trying to give up on us as they say, but I know he'll pull threw!!! They still don't know what is causing him to do the stiffening of his body and none stop shaking he does.... They aren't seizures tho! He has been on machines for that and they don't see any happening at all. My angel has lost his speach, he can't eat anymore, he can't walk, and body is very stiff. Jeo can hear us but tries to speak and cries when he realizes he can't. He gives us a little smile when he's listening to nursing rhymes and we put his idol John Cena wrestling matches next to his ear on the tablet. At the moment he has been placed on a feeding tube, and medicine to help him breath faster he tends to breath very slow now, and at the moment he is under plasma pheresis (washing of the blood) to see if it will help. We don't have exact answers on what's wrong with him yet! But reason I'm making this go fund me is because my mom has stopped working to be by brothers side. My dad has also been there because it's hard for him to be at work when they say we have to keep an eye on him. Their Bills are piling up and have backed up on payments, and we know staying at hospitals also requires money coming and going and food, Like I said we are a small family. We don't rely on anyone to help us, because in times like these is when you truly know who is there for you and sadly we have no one! Please help my parents in this hard time! Anything Helps!
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