HIATUS | Read Description | UPDATED NOVEMBER 09, 2017

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A Logic Named Jesse

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Published on May 4, 2015 5:46:12 PM ● Video Link: https://www.youtube.com/watch?v=vTNATZ1CHUs

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Vlog

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I'm going to keep this video description updated so either bookmark it or check back every so often.

| NOVEMBER 09, 2017 |
It's been a long time since I've given any sort of an update. Mostly because a lot of that time was spent going around in circles with trying new meds that didn't do anything & waiting for more important changes that would open up more options.
Firstly let's talk SSI. I have gone through a few months of waiting, being denied like everyone else, & appealing that denial. After another few months, I went to a hearing & told them everything I deal with everyday & how much I can't live a life, so working any sort of job is out of the question. I had a good attorney, she does a lot of SSI cases & she was confident I'd win. I did. I'm not officially disabled & on SSI. I got Medicaid insurance & I get a small check to help with things every month. So with the change, I had to switch everything from Charity Care to Medicaid.
I got a new primary doctor, a new rheumatologist, & am now going to a pain clinic. So we're still mainly trying new meds & seeing what helps, dropping what doesn't or what I can't get, like one medicine I got from a mental health center. I have some limits so for now I can't have too many doctors or appointments.
But next week I'll be trying an infusion medicine, giving directly into my blood by an IV. I tried other injection meds but they either didn't help maybe because maybe I didn't absorb them entirely, or one kind even made me worse. The infusion will take 3-4 hours so that'll be real "fun". I have a hard time going to appointments in general, sitting on a hospital bed that long is probably going to be one of the hardest things I do. I'm already screwed up after weeks of having an appointment every week, my hip feeling terrible. I'm dreading it really. Then I have another appointment the next week again, & then I have to do a second dose of the infusion! I might die, just saying.
But besides that, I've been doing pretty much the same thing everyday. Watching YouTube, or tv shows, or anime, or movies, etc. Trying to be as comfortable on my couch as I can. Maybe a little gaming on my PS4 here & there. My Ankylosing Spondylitis has been progressing still. It's a struggle to move around the house most days.
I've been single for a few months now. Things just didn't work out from both sides. I'm learning pretty well to be alone & things are better that way. I've got my mom & she's always there for me. That's all I need.
I don't talk to friends much. I'm often too tired, too fatigued, too uncomfortable, too pained, etc to even do that. It seems simple but it's not. I miss the days when I talked to , skype called, & gamed with my friends nearly everyday. I don't know if I'll ever get back to that. I hope so but I'm not going to get my hopes up too far. M rheumatologist said that damage may have already been done & the best I can get is maybe a little better & stopping the progression. So "normal" seems a tad out of reach now. My normal now is stuck on my couch doing the same thing everyday, some days interrupted by an appointment that ruins me for the next week. My life sucks. Lol.
So that's been my life the last 2 years & most recently. I don't know how often I'll update this again. It seems weird to report the same results again & again. I might wait until there's some real change.
If you have questions, feel free to ask them in the comments. If you want to reach me you can on Twitter or Steam or Skype, or pretty much anywhere you can find me. I try to check things often so you can find me somewhere or comment below.
Thanks for reading. See you next time.

| DECEMBER 10, 2015 |
Ok it's been a while. I haven't really been feeling up to updating this but I will.
SSI: I got denied. So I've already started the appeal process. Sooner or later I'll be going to a court ruling over it.
AS: Pretty much been on the same stuff for few months now. They just took my blood to make sure my liver is doing ok, & might up the doses of things or switch.
Depression: Yup. I guess I have that some. So I'm seeing a Psychologist, Psychiatrist, & Therapist. Already tried one anti-depressant med & didn't work so am now on a second one.
Nothing feels any different yet, & currently I have a cold so yay. Well report any changes in the future.
Oh yeah, my birthday was December 7th but I felt like doing absolutely nothing. Birthday wishes were nice to get though.


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