Millions Missing 2020 "Things you shouldn't say to an ME sufferer!"
20My video for Millions Missing 2020!
For this years video my friends suggested I do a "Things not to say to an ME sufferer!" video. All the examples given in the video are real things that myself or others have been told. If you're a sufferer, what things are you sick of being told?
This year it is vitally important that we get the word out, as there is a huge predicted uptick in ME cases due to COVID-19. Nearly all cases of ME start after someone has had a viral infection, including mine!
The ME/CFS challenge for this year is to pronounce Myalgic Encephalomyelitis! Just record a video of yourself saying it as best you can, and then share it with the tags #MillionsMissing #canyouseeMEnow #mecfs #MyalgicE or MEAwareness
Millions Missing 2018: https://www.youtube.com/watch?v=tHrsZ5e5Nkc
Millions Missing 2019: https://www.youtube.com/watch?v=qkgVZPq09p8
PACE trail video: https://www.youtube.com/watch?v=7NKsbjU89Zk&list=PLhADVL2AiGX-WGykGJgbOMsaasnF-jozn&index=9&t=0s
More info about the PACE trial: https://www.virology.ws/2017/03/23/an-open-letter-to-psychological-medicine-again/
Two great websites to check out:
https://www.meaction.net/
https://www.omf.ngo/